Tullman, the Porters prepared questions in advance of their appointment. Tullman encouraged Matthew to continue to run as far and for as many miles as he wanted to go. My MS is simply part of my journey. Carrie received the news of her diagnosis from her doctor, Dr.
He told her that she had relapsing-remitting MS. Carrie was shocked at the diagnosis. The phone calls Carrie made to her mother and brother weren't easy. It was a hard day," she remembered. I knew MS was something I was going to have to live with for the rest of my life. There are different options for managing MS.
Tullman added. Singer put Carrie at ease. An in-home nurse visited every few weeks to help me cope during the initial months. Singer also recommended Carrie engage in physical activity. Many patients with MS experience depression. After Carrie was diagnosed, she had emotional ups and downs. She took steps to reduce her mental and emotional stress. At the advice of Dr. Tullman, Matthew has taken steps to protect his mental health to stay positive and on course.
Multiple Sclerosis Summary
Tullman said. This past year, Dr. Singer told her that there were two new lesions on her brain. After seeing the results, Dr. While little US research is available, studies from Canada and Europe suggest that perinatal strokes occur in between 1 in 1, and 1 in 3, newborns. In children, the rate of stroke is estimated at 6 to 11 per ,, according to the International Alliance for Pediatric Stroke. The risk factors for stroke in children are also different than in adults. Stroke in children is most often caused by congenital or acquired heart disease, inherent disease of or damage to the arteries, or blood disorders such as sickle cell anemia or clotting problems.
Traumas to the head or neck can also cause stroke in healthy children by damaging blood vessels, or a routine virus can be a contributing factor, as in Bella's case, says Dr. Most drugs for MS, stroke, and sleep apnea are approved for adults and haven't been tested in children, which makes treating children more difficult. The more than a dozen medications for MS, for example, are used off-label when prescribed for children, says Deborah Hertz, associate vice president of health care professional engagement for the National Multiple Sclerosis Society.
Still, prescribing them has become almost routine, she says, with providers sharing best practices and experiences. Most insurance companies cover the medications. In , the National MS Society helped develop a network of MS pediatric care centers to "look at this underserved population," Hertz says.
That aligns with the figure provided by Tanuja Chitnis, MD, professor of neurology at Harvard and current chairperson of the International Pediatric Multiple Sclerosis Study Group IPMSSG , a collection of more than clinicians in 40 countries who share insights and provide guidelines for formulating clinical trials for children with MS.
She estimates that about 5 percent of the people diagnosed with MS each year will be younger than She expects that percentage to grow as diagnostics improve. Emily Blosberg currently takes an oral medication twice a day for her MS. Her most prominent side effects are hot flashes that can last for hours, leaving her exhausted. On her doctor's advice, she swallows a baby aspirin 30 minutes before taking her medication and changed her diet to consume more protein. Nicholas Brady's doctors treat his MS with twice-monthly infusions that sometimes cause headache, fatigue, and nausea.
He manages these side effects by staying hydrated, taking acetaminophen Tylenol , and resting. The problems usually resolve within a few days, he says. As the pediatric MS patient population grows, so too does the interest in it. With the help of the MS Cure Fund, IPMSSG is also creating a global registry of children with MS to share information about the best drugs to use and in which combination and doses to administer based on the patient population.
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Treatment for kids with sleep apnea is varied, and with the right attention sleep apnea can be corrected, says Dr. Many children noticeably improve after surgery to remove their adenoids and tonsils. After Mia's surgery, the number of times she stopped breathing per hour dropped from 27 to She also wears a rapid palate expander along with nighttime external headgear to help facilitate jaw growth.
Children who breathe with their mouths open can end up with elongated faces, misaligned jaws, or mouths that develop without room for wisdom teeth, according to the American Sleep Apnea Association.
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Users wear a mask or nose piece at night while a pump supplies a constant and steady stream of air. Mia's parents had to work to convince their daughter to try that. Now 8 years old and in second grade, Mia admits she feels better when she wears the mask to sleep-and the number of times she stops breathing per hour has dropped to two.
Pelayo, but those who do find it less of a hassle than many adults. Options for pediatric stroke are limited.
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The clot-busting drug tissue plasminogen activator tPA has resulted in excellent outcomes when given to adults within four hours of a stroke, but it's not approved for children. Doctors may still opt to administer the drug to children, but the correct dose is in question and it's very rare for a child to receive a stroke diagnosis within the optimal time frame, says Jorina Elbers, MD, a neurologist and assistant professor of neurology at Stanford University's Lucile Packard Children's Hospital.
Living with a chronic progressive condition from a young age isn't easy, but Nicholas Brady has taught others about his disease, including teachers who didn't understand why a boy who seemed healthy needed a wheelchair or extra time to finish school assignments.
Faces of Multiple Sclerosis | Roche
Nicolas no longer uses a wheelchair, but he still deals with fatigue, headaches, memory problems, and back pain. When Emily Blosberg sensed resentment from teachers and classmates who wondered why she was getting special accommodations, she explained to her freshman biology class how MS left her feeling like she'd been awake all night even if she slept. Then she showed a video to her entire school about what life with MS was like. I'm just looking for your support,'" recalls Emily, who also asked classmates to help her raise funds for research. When friends sleep over, she explains how the mask helps her, and she encourages her friends to try it out.
Michelle Ballasiotes had a perinatal stroke 18 years ago. An ultrasound revealed a brain abnormality, and a neurosurgeon present when Michelle was born noted hydrocephalus an abnormal buildup of cerebrospinal fluid in the ventricles of the brain, also referred to as "water on the brain" which could easily have been missed. He ordered surgery immediately to place a shunt in her head, both to drain the fluid and to relieve the pressure.
Michelle started occupational and physical therapy at 6 months and continued for the next 10 years. Now 18, Michelle plans to attend college next year to study public health or occupational therapy. Her mother, Mary Kay, of the International Alliance for Pediatric Stroke, knows her daughter is one of the lucky ones.
Not all strokes are caught so early. Ichord says the effect of stroke on a young brain is double-edged. On the other, if a function is knocked out by a stroke, the brain is forever altered, and the child will live with some effect of the stroke for the rest of her life. Ichord is optimistic about patient outcomes. My aunt has arthritis in her knees and her problems of pain and inflammation seem to be very like mine with gout.
Multiple Sclerosis : The at Your Fingertips Guide
What is the difference between gout and arthritis? Gout is an acute variety of arthritis. Typically, the first gouty attack involves the base of the big toe great toe , but gouty arthritis may occur at other sites. Acute attacks are typically accompanied by a fever, flu-like symptoms or a stomach upset.
The symptoms of gout usually subside completely between attacks in the early years. Later on, as the accumulation of urate in the tissues surrounding the joint continues relentlessly in the absence of urate-lowering treatment tophi lumps appear, and pain and swelling persist in between acute attacks. Uniquely, gout can be traced to the accumulation of a single waste product uric acid in the blood, so treatment to reduce this waste product is very effective in controlling the symptoms. The short answer is no!